tag:blogger.com,1999:blog-121146409691921018.post4004695812875354787..comments2023-11-02T07:36:09.313-05:00Comments on Experiencing Each Moment: CF UpdateAliciahttp://www.blogger.com/profile/14286911362296016524noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-121146409691921018.post-46406545694396237532008-07-10T21:11:00.000-05:002008-07-10T21:11:00.000-05:00Samantha is such a doll! I will definitely be pra...Samantha is such a doll! I will definitely be praying for her.<BR/><BR/>Just to ease your mind a little...I have two delta f508 gene mutations and I didn't need IV antibiotics until I was about 20. :) With the way science is advancing, we can hope that Samantha will never need them!Carahttps://www.blogger.com/profile/18140851739434937290noreply@blogger.comtag:blogger.com,1999:blog-121146409691921018.post-83541314014882483372008-07-10T13:26:00.000-05:002008-07-10T13:26:00.000-05:00Thank you for the birthday wish!! From seeing yo...Thank you for the birthday wish!! From seeing your blog...you have CF in your family, too. A cure would be grand!!!BloggyMomhttps://www.blogger.com/profile/14311884656651681349noreply@blogger.comtag:blogger.com,1999:blog-121146409691921018.post-28966444067534333502008-07-10T09:33:00.000-05:002008-07-10T09:33:00.000-05:00Hi! Thanks for the comment! I did post that incase...Hi! Thanks for the comment! I did post that incase someone else out there might be having the same issue. It was really scary when we couldn't figure out what was going on. Dr Warwick does not use pulmozyme at all at his clinic. He thinks it deteriorates the lungs faster than if you weren't on it at all and because a lot of people do have bad reactions to it but don't catch it because it is cf Carolynhttps://www.blogger.com/profile/08694643271879169711noreply@blogger.comtag:blogger.com,1999:blog-121146409691921018.post-3696325572022462562008-07-09T13:52:00.000-05:002008-07-09T13:52:00.000-05:00thanks for that post! i've been reading, just hav...thanks for that post! i've been reading, just haven't had time to comment. it's good that she is on the charts! jack's percentiles are much bigger than that :)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-121146409691921018.post-3705829832614430912008-07-09T12:18:00.000-05:002008-07-09T12:18:00.000-05:00What a precious girl! Once again, thank you for s...What a precious girl! Once again, thank you for sharing this journey with the rest of us. There is so much about my healthy kids I take for granted. I really appreciate you reminding me NOT to do that, as well as what you live with daily. <BR/><BR/>I was wondering what size Sam is wearing now in clothes. I know the percentiles for her size are really low but those are hard to wrap my brain Stephanie Kayhttps://www.blogger.com/profile/02976709475515458563noreply@blogger.com