May 8, 2008

National Cystic Fibrosis Awareness Month

I just want to thank all of you who have donated to our Great Strides Campaign. We are $10 over our goal, and we have an additional $600 in cash & checks waiting to be deposited. I am overwhelmed by your amazing giving! If you wanted to donate, and it's just slipped your mind, PLEASE don't let the fact that we've reached our goal stop you. Every dollar counts towards a cure! Just click on the link to the right. Nine days until Great Strides. I'll be posting pictures from the event (probably even BEFORE June 8th!)

These 4 exciting bullet points were in this month's CF Foundation Newsletter (Samantha was diagnosed with a newborn screen and believe early intervention has been key to her health):

We are pleased to tell you that, over the past seven days, Congress and the President took action on four separate bills that champion the rights and health of people with cystic fibrosis.

The Cystic Fibrosis Foundation played a hand in each of the following developments:
  1. The Senate officially recognized May 2008 as National Cystic Fibrosis Awareness Month.
  2. Congress passed the Genetic Information Nondiscrimination Act (GINA) today. This law makes it illegal for employers and insurance companies to discriminate based on genetic information.
  3. President Bush signed into law the Newborn Screening Saves Lives Act, which provides resources and funding for new and existing newborn screening programs through 2012.
  4. The House of Representatives reauthorized the Small Business Innovation Research (SBIR) program. This program awards grants to small biotechnology companies that conduct important CF research.

2 comments:

jill said...

where have you been lately?? i miss your posts :)

Penny said...

I miss you!