About 3 weeks ago, Samantha was put on an antibiotic for upper respiratory-like symptoms. Every time we put her on antibiotics she loses her appetite. This time it hasn't really come back, which is disappointing. She did gain a little in the last 3 months, but not as much as I would like. She's also pretty lethargic, which makes me think she's lacking some kind of nutrient. Thankfully, this was the big appt of the year where we do chest x-ray and blood work.
First stop: x-ray. Samantha's lungs look clear: "no pneumonias, no blockages, whatever you're doing is working". Have I mentioned that Samantha is not "into" x-rays. She had calmed down just in time to get to clinic...
Next stop: basic stats
Pulse Ox: 99 (Yippee!)
Weight: 13.2 kilos = 29 lbs; 30th percentile
Height: 92.7 cm = 36 inches; 30th percentile
A continual goal for CFers is 50th percentile, but Samantha has sustained a consistent 30th percentile height, which makes her 30th percentile weight a little more acceptable. We'll continue to pump calories in her as best we can. We're looking at a 15.5 BMI, which is about 40th percentile.
Third stop: blood draw
I thought I was going to start crying. I think it lasted 5 minutes...it took forever!!! Dan and I were both having to hold her down. She kept looking at the needle and blood was leaking out. It was awful. She was so traumatized afterwards that she fell asleep sitting up in my lap. I call back Monday for lab results.
Doc did a pretty minor exam on her (since she was out cold), but then decided today would be a good "test Vest" day. I'm sure all of you CF moms are thinking "Samantha is 3 and doesn't have a Vest?" I know...it's shocking. That's not even the norm in our clinic. Basically every time we go there is a different reason he chooses not to start it. We practiced it a year ago, and she got through an entire 20 minutes, but oh no not today. Did I mention she was still traumatized? We made it almost 4 minutes before the RT said let's call it quits. So the reason we won't be starting The Vest now? Patient Compliance (or lack thereof). I think I actually heard my aching wrist let out a cry. I want The Vest SO badly, but Dan is deploying very soon so consistency in treatment is a good thing.
By the way, CF moms, Sam wore a "small" Vest today, and we had to wrap it pretty tight. I'm just curious if any of you used anything smaller (like extra small?) when your kids were younger?