July 16, 2008

Two Cystic Fibrosis Anecdotes

Until yesterday Samantha lumped all her different medicines together, whether they be liquid, capsule, or inhaled. She simply calls them "medicine". Yesterday, however, she was hungry and said, "I want some 'e-zymes'." I'm so glad she knows that to eat she has to go through enzymes first!

About an hour ago, Timothy asked for yogurt, and I told him he could get it on his own. In the excitement Samantha agreed and followed. They had worked it all out, evidently, because she had climbed up into her chair to eat, and he was getting 2 yogurts and 2 spoons. I was hearing all of this from the living room, and then Timothy ran to me saying, "Mom, I need to put Sam's enzymes in her yogurt! Can you tell me where they are?" I'm crying now thinking about how sweet and loving and protective that is.

7 comments:

Christi said...

That is precious! What a smart little girl and a sweet big brother!

jill said...

AWWWWWWWWWWWW sniff sniff

Julie said...

It sounds like your Samantha is a lot like my Seamus. They are so close in age too. I wish he had a big brother to look after him.

He came home from the hospital and so far hasn't vomited but keeps saying he feels like he has to so to me, that's not a successful admission. However, the docs wanted us out of there. We'll see how long it lasts.

Julie

Stephanie's Mommy Brain said...

What a smart girl!

prayingforsailors said...
This comment has been removed by the author.
Katey said...

Hi Alicia,

Thanks for your comment on my blog. Your kids are so cute and I can't wait to read more on your blog. I'm going to do a post that will answer your question. But yes, usually each CF facility and team of doctors have their own guidelines. However, there are similar things amogst all CF centers and physicians...and I'll do my best to elaborate some on that. Keep in touch!

Oh and by the way, I'm taking a trip to San Diego in about 3 weeks to visit a friend of mine. I noticed you live there. I'm so excited!

Deron Arnold said...

Great stories!

Learning to take meds (and willingness to take meds) are two great hurdles to pass.

And having a helpful older brother will be so significant!