I think when some people hear about Cystic Fibrosis from my family they may falsely believe that CF really isn't that big of a deal and that it's "manageable". Sadly, that is not true. It is always progressive and multiple factors (genetics, nutrition, activity level, etc) determine how well and how long someone with CF lives. Double lung transplants are becoming increasingly common (single lung transplants are pointless) and literally breathe new life into a person with CF. Once lung function drops below a certain level, the CF patient gets on the waiting list.Tricia and her husband of Confessions of a CF Husband have been waiting for a while, and she finally got her double lung transplant this week. They have an amazing story of faith, CF, and love, and he chronicles it beautifully. I have to read it in small doses because it's quite overwhelming for me emotionally, but it is truly a story of hope.
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I was wondering if you were aware of her transplant. Reading their story always makes me think of y'all. Have you been able to connect much with any other CFers?
WOW - i had no idea they can do LUNG transplants! i ended up reading a little on her story and she's amazing. i hope that gives YOU hope about samantha's life - especially since she's so young and they've made so many advances so far. how awesome would it be if there was a cure when sam is THIS girl's age?
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