Alicia, You have a beautiful little miracle girl!!! Thank you so much for your sweet comment. Do you know any other people that have had a similar diagnosis as me? I am trying so hard to read about/come in contact with people that know more about this than me. It is so hard to be diagnosed with something that you can't really talk to anyone about b/c they have never experienced it... Thank you so much and blessings to your family. Angie
I can't thank you enough for being such a kind and informative friend! I have not had the sweat test done yet and I am still waiting to hear from the doctor about what 2 mutations I have exactly. I do know that when he called to give me the diagnosis he mentioned that they were on the mild side of CF and not the more severe mutations...but, that is all I know and I don't even know what that means! I feel so uneducated and lost right now! It is killing the Type A personality side of me to feel that way, too. I would be so happy to have you blog about this or add me to your blog roll. I am grateful to you and welcome anyone I can meet or any info I can gather.
Thank you again ~ you have been such a blessing to me in the last few days.
3 comments:
I am getting my first vest in a few days/weeks. I am so excited. Mine is being given as a gift to me-- a major gift!!
Alicia,
You have a beautiful little miracle girl!!! Thank you so much for your sweet comment. Do you know any other people that have had a similar diagnosis as me? I am trying so hard to read about/come in contact with people that know more about this than me. It is so hard to be diagnosed with something that you can't really talk to anyone about b/c they have never experienced it...
Thank you so much and blessings to your family.
Angie
I can't thank you enough for being such a kind and informative friend! I have not had the sweat test done yet and I am still waiting to hear from the doctor about what 2 mutations I have exactly. I do know that when he called to give me the diagnosis he mentioned that they were on the mild side of CF and not the more severe mutations...but, that is all I know and I don't even know what that means! I feel so uneducated and lost right now! It is killing the Type A personality side of me to feel that way, too. I would be so happy to have you blog about this or add me to your blog roll. I am grateful to you and welcome anyone I can meet or any info I can gather.
Thank you again ~ you have been such a blessing to me in the last few days.
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